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Living with ALS: Finding Peace and Wisdom Within a Fragile Existence
March 15, 2024
A former NFL player chronicles the exhausting challenges of living with amyotrophic lateral sclerosis. Gleason's bluntly candid memoir opens with his care crew's grueling one- to two-hour routine to prepare him for the day ahead "because I can no longer move, talk, or breathe." In 2011, the author was diagnosed with ALS; defying the typical five-year life expectancy, he survives today, despite an emaciated, "withered" physical form and insurmountably "relentless and humiliating" physical limitations. Living in a wheelchair and on a ventilator for a decade, Gleason relies on the collaborative trust processes established within his team, communicating using eye-tracking technology, facial movements, and an ingenious rudimentary letter-board system. The author provides informative, conversational background on his youth in Spokane, Washington, raised by a "single-minded tough guy" father and a "quiet, cerebral" mother. Despite being born with a foot deformity, Gleason drew confidence from athletic success, which his father actively encouraged; the author's hard work and dedication earned him a scholarship to Washington State to play football and baseball. Flourishing in college, he joined the Indianapolis Colts in 2000 and then the New Orleans Saints. After dramatically depicting his career highlights, Gleason writes frankly about finding motivation now through his children, his faith, and the defiant spirit of Buddhist monk Thich Quang Duc, which "inspires and motivates me every morning." The author intimately portrays the evolution of his relationship with his wife and capably recounts his tireless efforts raising funds for and awareness of ALS. Though his post-football life has grown physically and emotionally arduous, Gleason takes nothing for granted and courageously exposes the raw details of his journey, which are persistently grim but also moving and hopeful for others dealing with disabilities. A sobering, inspirational sports memoir grounded in inner strength and resiliency.
COPYRIGHT(2024) Kirkus Reviews, ALL RIGHTS RESERVED.
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